Nighttime Munchies

Happy St. Patrick's Day

I Love You!

We spent part of the afternoon at Nana's house (my mom) yesterday. We joined her for lunch, and then helped her get a few things done. Papa Donnie was there too, and Ryan just loves his Papa Donnie! This picture proves it.

Just In Case You're Wondering...

Yes, I do have to pick up most of the contents of this cabinet at least once or twice a day.

Be sure to scroll down a little. I already posted a set of pictures before this post.

Can I Have a Cracker?

"Mom, can I have a cracker?"

"Please?"
"Pleeease mom, can I have a cracker?"

Blessings Beyond Measure

Hooray for Coy! Please check out this blog: http://prayforcoy.blogspot.com. AnnMarie and Chris finally got to take their precious little miracle home. He was a 23weeker preemie, and has been in the hospital for 100-some-odd days (I don't know the exact number). I'm so happy for them. I hope someday their sweet miracle and ours can have a play date! Wouldn't that be fun?!

March for Babies update:
We've officially raised $120 so far. This is very exciting. Thank you, thank you, thank you to those who have donated! I feel so strongly about supporting the March of Dimes. The March for Babies walk is in May. We still have time to raise more, and you can still join our team. We'd love to have you. I read about other families having 40 or 50 team members. How exciting! I tend to be a bit reserved until I know more about something, so this year I will be happy with any size team and, for the most part, any amount of donations. I hope to learn a lot about the walk this year, so, watch out! Next year I'll probably have big, loft, huge, exciting goals and plans.

Remembering...

I'm really tired tonight, so I thought I would post a picture of Ryan from one year ago. It's a reminder of how far he has come.

My mom came home from the hospital today. It was a long day for all of us. Ryan and I left the house around 9 this morning. We got home around 2 this afternoon. I'm very glad that mom is home now. Ryan is very glad to not be at the hospital anymore. He doesn't understand why he isn't allowed to crawl around on the hospital floor picking up small caps off syringes to chew on. I'm ready to be able to get back into a routine around here. Don't get me wrong...I'm not complaining. I feel incredibly blessed that I live close to my mom and have been able to be with her everyday these last 2 weeks.

As far as "Ryan News":

Ryan has learned three things recently.

1: He has learned he can get loud. He thinks it's great to see how loud he can scream

2: He has learned how to spit...or rather to stick his tongue out and blow bubbles.

3: He has learned how to throw a fit! Oh my! Can terrible two's start at 13 months. No really...it's not that bad...yet. He gets mad...mad because he fell down...mad because he can't pick up the washing machine soap cup...mad because he dropped the can of tomatoes on the ground...mad because he doesn't like how the tile feels on his knees...mad because I didn't give him the bottle quick enough...mad because I left the room without taking him with me...and then he screams! If I can get a video of him throwing a fit I'll post it. For now it's not that offensive, but I'm sure the time will come when it is anything but cute. At least for us. You might think it's still cute, afterall, you don't have to deal with his temper tantrums.

Lost in Thought

Simple Innocence

Pictures of the Day

Yesterday we did a little yard work preparing for our garden. "Dirty Feet"

"Ewwww"




Update

Ryan is doing GREAT! I really don't think it was RSV after all. When he started the decongestant he was a completely different baby the following day. He hasn't had/needed a breathing treatment for a couple of days now. My mom is doing much better too. She may get to come home tomorrow or the following day. She is excited. Thanks for all the prayers.

Unfinished Business

(I promise I'll post a picture of the day and a Ryan update later today.)

I remember being told the day I went into labor early with Brandy that I would forver be categorized as “high risk”. I find that people are continually divided into categories, “clubs” if you will, in this life. There is the the “singles” club, the “newly married” club, the “new parents” club, the “parents of teenagers” club, the “empty nesters” club, the “grandparents” club. The list could go on forever, and these are only some broad categories. Then there are clubs within the clubs like “parents of kids with birth defects”, “parents of preemies”, “ grandparents raising grandkids”, etc. Of course this is just my observation and my opinion. There is no scientific basis on which I make my assumptions, but if you think about it, it does seem quite true.

I'd like to talk about a couple of the groups of which I'm a member. First is the “Preemie Parent” group. I just love the website http://www.shareyourstory.org/. It's a website designed for and by parents of preemies. Most of the members on the site have a preemie, or very nearly had a preemie, or have had some very close encounters with prematurity, or have had a child with a birth defect. The site is part of the March of Dimes. I love going to this site and reading and gleaning information from other mothers with preemies. Unless you have had a preemie there are so many things that “normal” people just don't understand. I didn't realize a lot of the issues with prematurity, and I still don't relate in some ways because my preemie doesn't have some of the issues many preemies have like feeding tubes, reflux, growth problems, learning problems, CP, etc. I can't tell you how many times I've asked for advice from my online friends, and I've received trusted advice and much needed encouragement from these families who are also in this “Preemie Parent” group.

I'd like to talk also about a group I'll call “Parents Who Have Said That Final Farewell to Their Child”. It's not a group I would have chosen to join, and it's definitely a group I pray no parent has to enter. When you enter this group it sets you apart from other parents in very complicated ways. I've had some friends be frankly honest with me and explain that they struggle with getting too close to me for fear of not knowing how to deal with Brandy's death, for fear of being reminded that they, too, could possibly lose a child. I've had some people, who I once considered close friends, act like I no longer exist. I've had some friends accept Brandy's death, accept me, allow me to talk about Brandy when I need, rejoice with me now, and love me through it all.

So you may be wondering what started this rant today. When Brandy was born I became close friends with someone. We talked daily. She offered encouragement through scriptures and prayer and by just being there. I love this sweet, sweet woman. I called her the day that Brandy coded in the hospital. From that day forward she never spoke to me again. She stopped answering my phone calls. She stopped responding to my e-mails. It was really sad, but I didn't harbor any ill feelings toward her. Yes, I was confused, but I wasn't mad. I prayed for her.

Fortunately I don't have the experience of being on the other end of a situation like this. I've never been close friends with someone who has lost a child. I've learned from my close friends what a difficult situation it is being the friend of someone who has lost a child. What do you say? How can you comfort? How do you go on with all of this together, as friends? I don't completely understand that position because I've never been there, but I understand it to be a difficult one which is why I won't judge anyone for struggling with it.

Just yesterday I happened to run across this woman in an elevator. Of all people to be trapped in an elevator with, I was excited. I have longed for seeing her again and talking with her. I was hoping for either a great “reunion” of friends, but I was willing to accept a “termination” of friendship if that is what happened. I wanted to sit and reminisce, but I mostly wanted to know, “did I do something wrong? “Could we be friends again?” I got neither. The conversation was cordial, but it was very empty. I left the elevator wishing for more. I was hoping for some closure instead I left with that feeling of “there's still some unfinished business”. Perhaps dealing with Brandy's death was just too much for her, but I still don't understand why I must, in a sense, die too.

Here is a list of things I wish people understood now that I have lost a child:

• I lost a child
  
• Saying that final farewell is excruciatingly painful
  
• I know Brandy is in a better place now, and desiring/asking her to stay on this earth would have been extremely selfish of me
  
• I miss her dearly
  
• I don't dwell on her everyday, but there isn't a day that goes by that I don't think of her
  
• I love talking about her, but I promise I won't trouble you with long conversations about her unless you ask
  
• When I start to feel sad I often imagine her dancing and laughing and playing on Streets of Gold. It makes me feel better especially since she would have never done those things here on earth
  
• I still cry from time to time
  
• I sometimes look at other little girls who would be about her age and imagine what it would be like if she were still here
  
• Just because Brandy died doesn't mean I did too
  
• I'm still here. I still exist.
  
• I still love to talk about the future and having more children and loving the child I now have
  
• I still love to have fun
  
• I still love to laugh and play
  
• I love to get together with friends and just talk about life...not the past, but the excitement of the present and the anticipation of the future.
  
• I love my life, and I'm excited about what God has in store for me.
  
• I eagerly look forward to Jesus' return.
  
• I am more excited about the day I go to Heaven than I have ever been. My little girl is there and I look forward to seeing my Jesus and my baby when God says its time for me to go.
  
• I hope God blesses me with a long life here on earth. I am such an unfinished work. I have so much to learn, so much growing to do.

If you've ever lost a child and want to contribute to the list please send me a note.

Hey! That's MY shoe!

Caution! May Cause Drowsiness...

"Caution! May cause drowsiness. Do not drive or perform other potentially dangerous tasks until you know how this medicine affects you."

I think I'll rewrite it to say: "Caution! May cause extreme excitability, giggles, and the absolute refusal to go to sleep. This medicine may also necessitate the implementation of creative measures to get your child to actualy swallow the nasty stuff." Ryan got his new medicine yesterday. It is Respi-Tann, a decongestant/cough-suppressant. He hates the stuff. I've never seen a kid hold something in his mouth as long as Ryan will this stuff without swallowing. He got his first dose yesterday afternoon. He has had 2 doses today, am and pm. This evening he has been so incredibly wild, off-the-walls kind of wild. He has been very giggly, and getting him to go to sleep was a BIG challenge. It could be related to his lack of routine this week with going to the hospital so much, but I am wondering if it might be the medicine. Ryan is doing very well. I'm starting to think that maybe this little illness was actually just a cold like the pulmonologist tends to think. Today he has been soooo much better. He has been coughing, but the cruddy sounding congestion that he was having is a rarety now.

My mom is doing better today. She is very ready to go home. It will still be a couple more days I imagine. She still has some hurdles to overcome before they are going to let her go home. She took a walk with us down the hall today, and that is a good start towards coming home.

Thank you very much for all the prayers. I love you all.

Julie

My Little Trekkie

One of the traditions in our house is watching Star Trek (the original series only). Yes...we own all of episodes from the original series. Almost every evening after Ryan has had his bath we watch an episode. We started noticing that when the theme song would come on he would suddenly stop everything he was doing...even eating!...and begin watching the TV. After awhile we started paying attention to Ryan. He LOVES that song, but he doesn't just love the song he LOVES the words (names of actors) that pop-up on the screen as it plays. He just laughs and smiles so big everytime a new name appears. It's great!

Breathing Treatment

Ryan is doing well although he sounds pretty bad at times. He had an appointment with the pulmonologist yesterday for his Synigis (RSV shot). Dr said he thought he only had a cold, but if it's RSV it's a really mild case. Part of me wishes to know exactly what it is. This may seem silly, but after this season is over I'd like to honestly say we never had RSV (especially since one of our doctors kept saying *when* Ryan gets RSV....). At least if he does have it I would like to honestly be able to say we conquered it. Oh well.

He is getting breathing treatments 2-3 times a day with Xopenex. The pulmonologist also prescribed something for his runny nose. I don't know what it is, and he hasn't started it yet because the pharmacy didn't have any yesterday. We will pick that up today.

Some specific prayer requests: please pray he doesn't get any worse with *whatever* he has. Please pray also for a hedge of protection around him as we are spending a lot of time at the hospital with my mom. Please pray for my mom. For those of you that don't know she had a small bowel obstruction. Her surgery was Monday. She was hoping to be home long before now, but she's had a few unforeseen setbacks that have delayed her discharge. She is doing well, but she is still in a lot of pain and is getting discouraged.

ANSWERS (You can probably figure out what questions were asked)
--Yes, he's been quite cranky with this illness, but it comes and goes. Sometimes I question whether he really is ill...he still acts like a wild and crazy nut at times
--No he hasn't been running a fever
--He weighs 15 pounds 13 ounces
--He has taken 7 steps by himself (falling on the 7th)
--He has a good appetite most of the time, but lately he hasn't wanted to eat much of anything
--He is starting to eat finely chopped, mushy, table-food
--He can hold is bottle, finally!
--He will only hold his bottle when HE wants to
--His favourite thing to play with is the dog's water dish (yes, it's a constant battle)
--He is wearing size 6-9 months, but he has started to wear some of his 12 month clothes
--He has not started drinking from a cup. Yes, we've introduced it. If you know of a sippy cup that will handle warm milk (the one's we have form an internal suction that makes it impossible for him to get anything out if the milk is warm) let me know.
--Before you ask...no he will not take cold milk or cold anything else for that matter.

One Of Their Only Redeeming Qualities

Since the address of this blog is ryanandhispuppies I thought I should give Ryan's puppies their "15 seconds of fame". This video shows how they earn their keep...they make us laugh.

Pictures

Here are some pictures from the last few days.

Happy baby boy... chewing on a brush.

...and quite proud of himself, but very, very cute.

Happy Boy

"I'm a big boy, Mom!"

Don't worry Mom, I got it!

Me and Mr. Squid

This is Ryan taking his breathing treatment this morning. The nebulizer compressor unit looks like a cow and the the mask looks like a fish or squid.

Yes, Please

Here is the video that goes with my earlier post. I dug out our "back beaters" last night and decided to try them out on Ryan to help break up his congestion. I wondered what he would think about being beat on his back. He loved it. If you look closely you can see him smile and even here a giggle now and then. I hope you enjoy.

Beat Me?...Sure...That Would Be Great!

Ryan had a runny nose on Friday. He didn't sleep well during the night because he was too stopped up to breathe well and he was coughing. On Saturday he was still coughing and congested. Sunday was the same, but we weren't all that concerned. However on Sunday night he was still coughing a little, and I thought I heard a little wheezing. I decided, somewhat reluctantly, to take him to the doctor yesterday. I was hoping to completely avoid the doctor's office at least until April because where else do sick people gather the most?...at doctor's office waiting rooms.

After nearly an hour of waiting we saw the doctor. I was really expecting (hoping) that the doctor was going to say it was a simple cold or allergies or even teething. Much to my surprise Dr. S said Ryan sounds like he has RSV. The progression of symptoms fit, and he said his lungs sound very typical of a baby fighting RSV. Oh my!

Do you know how disappointing this is? I've spent the last 6 months doing everything I possibly know how to do to keep Ryan well, and especially free of RSV. There is probably no way we will know where he could've been exposed. Many of you know we don't go anywhere with Ryan. RSV can live on hard surfaces for at least 6 hours. More than likely I brought it home from Wal-Mart or Wade brought it home from work.

So all in all we are now battling RSV at my house. Ryan is on breathing treatments every 6 hours as needed. The doctor said it is very mild at this point and the Synigis was probably the biggest contributor keeping him from getting horribly ill. We are praying for rapid healing of this infection and definitely that it progresses no further.

I'm having trouble uploading the video. I'll try later.

Apologies

I apologize for the lack of pictures lately. Life suddenly through out some unexpexted turns requiring most of my attention. I'll try to post a video tomorrow.