Life Is Good: New Links

Wednesday, February 27, 2008

New Links

Please look to the right of this page to find links to other stories. God is working in these families, and I'm sure they would be blessed to have more people reading their stories and praying for them.

http://prayforcoy.blogspot.com
This is the story of a little preemie with a story quite similar to Ryan's. He was born at 23 weeks. He is still in the NICU. He is doing well, but he has had a few setbacks that we were spared. God is working in his life and the lives of his family. Please read their story.

http://cfhusband.blogspot.com
This is an incredible story that I'm sure with daily readings you will find yourself drawn to read the updates everyday. God is working in their lives also. This is a father's account of their story. His wife has cystic fibrosis (CF) and was preparing for a double-lung transplant when they found out she was pregnant. Her little girl was born prematurely and has been in the NICU for about 7 weeks. She still has a long way to go and many obstacles to overcome, but God is good. She is doing quite well even at her tiny size of little over 1 pound. The mother is now waiting for new lungs. She is on the list to receive a double lung transplant. This story is amazing. This story will inspire you and bless you in many ways. Please read their story.

http://oliviaandlogan.blogspot.com
This is the story of a family who had twins born early. They were also 23 weekers. The little boy has already gone home to Heaven. The girl is at home with her mom and dad. Read their sweet story.

More links to come....

Thanks.

1 comment:

CFHusband said...: Thank you!; March 2, 2008 at 11:18 PM

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Brandy Danielle

Brandy is our firstborn, our precious angel baby girl. Her entry into this world wasn't without excitement. At 26 weeks I started preterm labor with contractions 5 minutes apart. With 10 weeks of strict bedrest, most of which were in the hospital, she made it to 36 weeks.
Brandy was diagnosed with "possible/probable" heart defect around 28-30 weeks gestation. After her birth she was whisked away to the NICU for monitoring and after a few days her defect was formally diagnosed and labeled...atrial septal defect and a cleft mitral valve.
Brandy, upon indications of failure to thrive and pulmonary hypertension, underwent her first of 2 open-heart surgeries at 4 months of age. A week after her surgery on the day of her anticipated discharge home Brandy coded for 13 minutes...a stoke.
From that point on Brandy's life was full of doctor's visits, endless crying, pain and suffering. She underwent another heart surgery, fundoplication and g-tube surgery, treatment for infantile spasms, and a mountain of tests and procedures. Her brain damage was extensive.
Upon counseling of our wonderful, most amazing heart surgeon, Dr. Christopher Knott-Craig, and many hours of prayer, we finally called in hospice and called off all of the extensive medical interventions and surgery needs that would prolong her suffering while possibly prolonging her life. Brandy, our precious baby girl...our angel...passed out of our arms and into the arms of her Saviour, Jesus at the tender age of 17 months.

Ryan Andrew

Ryan, our micro-preemie miracle, is a ball of life. After nearly a year of trying to conceive imagine our delight when we finally knew he was on the way. My pregnancy with Ryan was uneventful at first. It seemed perfect and with all of the precautions for preterm labor being taken and monitored we entered this pregnancy with cautious anticipation covered over by a whole love of naive excitement.
At 20 weeks we discovered our "Baby Peanut" was going to be a little boy. We began to make plans and began dreaming about the day we would meet our son.
Almost 2 weeks later everything changed in our lives. It wa a whirlwind of fear and emtions as I began to bleed, was sent for monitoring in L&D and eventually had an appointment with my OB only to find out that it was serious. I had incompetent cervix with hourglassing membranes. The doctor admitted me to the hospital immediately and an emergency cerclage was placed. The statistics were grim, but the hope was to keep our son inside for at least 10 more weeks. We only made it 10 more days.
Early in the evening of February 11, 2007 our son, Ryan, came into this world in emergency fashion at only 23 weeks 5 days gestation. He weighed 1 pound 8 ounces and was 12 ½ inches long. He was so tiny. All I could think of was “oh my goodness is he really that tiny? And is there any way he could actually make it?” I tried to hold on to hope, but in all honesty I had never met anyone with a baby born that early and that small that ever made it.
Ryan did make it! It was a long, hard road, but in the end he spent 90 days in the NICU. He was on a ventilator for 2 months. Finally on one fine glorious day in May we bundled up our 4 pound 4 ounce baby boy and went home...May 11, 2007.
Ryan is now a spunky, lively, strong-willed little boy. His laughter is contagious and his spirit is compelling. He is our miracle. There are no words strong enough to share our delight and joy that God has blessed us with this little boy.

Evan Alexander